Browsing by Author "West NS"

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    Placing the values and preferences of people most affected by TB at the center of screening and testing: an approach for reaching the unreached.
    (2023) Kerkhoff AD; West NS; Del Mar Castro M; Branigan D; Christopher DJ; Denkinger CM; Nhung NV; Theron G; Worodria W; Yu C; Muyoyeta M; Cattamanchi A; Treatment Action Group, New York, NY, USA.; World Alliance for Lung and Intensive Care in Uganda, Kampala, Uganda.; Division of Infectious Diseases and Tropical Medicine, Center of Infectious Diseases, Heidelberg University Hospital, Heidelberg, Germany.; Center for Tuberculosis, University of California San Francisco, San Francisco, CA, USA.; German Center of Infection Research, Partner Site Heidelberg University Hospital, Heidelberg, Germany.; Center for Tuberculosis Research, De La Salle Medical and Health Sciences Institute, City of Dasmarinas, The Philippines.; Division of Pulmonary Diseases and Critical Care Medicine, University of California Irvine, Irvine, CA, USA.; Division of Pulmonology, Mulago National Referral Hospital, Kampala, Uganda.; Division of HIV, Infectious Diseases and Global Medicine Zuckerberg San Francisco General Hospital and Trauma Center, University of California San Francisco, San Francisco, CA, USA.; Pulmonary, Critical Care Allergy and Sleep Medicine, University of California San Francisco, San Francisco, USA.; University of Medicine and Pharmacy, Vietnam National University Hanoi, Hanoi, Vietnam.; Centre for Infectious Disease Research in Zambia, Lusaka, Zambia.; DSI-NRF Centre of Excellence for Biomedical Tuberculosis Research; South African Medical Research Council Centre for Tuberculosis Research; Division of Molecular Biology and Human Genetics, Faculty of Medicine and Health Sciences, Stellenbosch University, Cape Town, South Africa.; Department of Pulmonary Medicine, Christian Medical College, Vellore, India.; CIDRZ; Centre for Infectious Disease Research in Zambia (CIDRZ)
    To reach the millions of people with tuberculosis (TB) undiagnosed each year, there is an important need to provide people-centered screening and testing services. Despite people-centered care being a key pillar of the WHO END-TB Strategy, there have been few attempts to formally characterize and integrate the preferences of people
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    Selfie consents, remote rapport, and Zoom debriefings: collecting qualitative data amid a pandemic in four resource-constrained settings.
    (2021-Jan) Reñosa MDC; Mwamba C; Meghani A; West NS; Hariyani S; Ddaaki W; Sharma A; Beres LK; McMahon S; On behalf of the Social & Behavioral Sciences Team, The Rakai Health Sciences Program, Rakai, Uganda.; Heidelberg Institute of Global Health, Ruprechts-Karls-Universität Heidelberg, Heidelberg, Germany mcmahon@uni-heidelberg.de.; On behalf of the Social & Behavioural Science Group, Centre for Infectious Disease Research in Zambia, Lusaka, Zambia.; Heidelberg Institute of Global Health, Ruprechts-Karls-Universität Heidelberg, Heidelberg, Germany.; Department of International Health, Johns Hopkins University Bloomberg School of Public Health, Baltimore, Maryland, USA.; Department of Epidemiology and Biostatistics, Research Institute for Tropical Medicine, Department of Health, Manila, Philippines.; Johns Hopkins India Private Limited (JHIPL), Delhi, India.; CIDRZ; Centre for Infectious Disease Research in Zambia (CIDRZ)
    In-person interactions have traditionally been the gold standard for qualitative data collection. The COVID-19 pandemic required researchers to consider if remote data collection can meet research objectives, while retaining the same level of data quality and participant protections. We use four case studies from the Philippines, Zambia, India and Uganda to assess the challenges and opportunities of remote data collection during COVID-19. We present lessons learned that may inform practice in similar settings, as well as reflections for the field of qualitative inquiry in the post-COVID-19 era. Key challenges and strategies to overcome them included the need for adapted researcher training in the use of technologies and consent procedures, preparation for abbreviated interviews due to connectivity concerns, and the adoption of regular researcher debriefings. Participant outreach to allay suspicions ranged from communicating study information through multiple channels to highlighting associations with local institutions to boost credibility. Interviews were largely successful, and contained a meaningful level of depth, nuance and conviction that allowed teams to meet study objectives. Rapport still benefitted from conventional interviewer skills, including attentiveness and fluency with interview guides. While differently abled populations may encounter different barriers, the included case studies, which varied in geography and aims, all experienced more rapid recruitment and robust enrollment. Reduced in-person travel lowered interview costs and increased participation among groups who may not have otherwise attended. In our view, remote data collection is not a replacement for in-person endeavours, but a highly beneficial complement. It may increase accessibility and equity in participant contributions and lower costs, while maintaining rich data collection in multiple study target populations and settings.